Cure ADOA Foundation
The Cure ADOA Foundation is for people with a severe hereditary disease of the optic nerve called: autosomal dominant optic atrophy (ADOA). This disease is caused by a mutation in the OPA1 gene. With ADOA, the optic nerve dies overtime, leading to visual impairment or even blindness. There is also an ADOA+ variation with additional symptoms such as hearing loss, problems with coordination of movements and/or muscle problems.
Focus on treatment and cure
Since November 2018, Cure ADOA Foundation has been focusing on fellow patients and their families. We have the following goals: scientific research, disease awareness, interaction between all parties involved and a trustworthy place for the patients.
Our ultimate goal is treatment and cure!