Downloads
Downloads
Below you will find the various brochures and other downloads we currently offer. You can download the digital versions and you can Send Hedy an email to request paper brochures or business cards, she will then make sure that they are sent to you by post.
Patient brochure
For patients who are unfamiliar with the Cure ADOA Foundation, we've created a digital patient brochure. You can download, email, print, etc., and bring it to the attention of your GP, ophthalmologist, optometrist, optician, low-vision specialist, clinical geneticist, and other healthcare providers, or even leave it there.
The brochure is available in Dutch, English, German, French, Italian, Turkish and Spanish.
What is ADOA – Dutch patient leaflet 2024
What is ADOA – English patient leaflet 2024
What is ADOA – German patient leaflet 2024
What is ADOA – French patient leaflet 2024
What is ADOA – Italian patient leaflet 2024
What is ADOA – Turkish patient leaflet 2024
Patient leaflet about ADOA-plus
Our patient leaflet for ADOA-plus has also recently become available. As far as we know, this is the first leaflet about ADOA-plus, so naturally we are very proud of it!
Below you can download the ADOA-plus patient leaflet in various languages.
Everything about ADOA-plus – Dutch patient leaflet 2026
Everything about ADOA-plus – English patient leaflet 2026
Everything about ADOA-plus – French patient leaflet 2026
Everything about ADOA-plus – Spanish patient leaflet 2026
Everything about ADOA-plus – German patient leaflet 2026
Healthcare provider brochure
In order to increase awareness among healthcare providers such as ophthalmologists, orthoptists, optometrists, etc., we have created a healthcare provider brochure. With this, we hope that ADOA will be recognized more often and that the diagnosis can be made more quickly. This can be downloaded below and you can also email and print it. And of course, this may also be brought to the attention of healthcare providers.
More attention for ADOA – Dutch healthcare provider brochure 2025
More attention for ADOA – English healthcare provider brochure 2025
More attention to ADOA – German healthcare provider brochure 2025
More attention to ADOA – Spanish healthcare provider brochure 2025
More attention to ADOA – Turkish healthcare providers brochure 2025
More attention to ADOA – French healthcare providers brochure 2025
More attention for ADOA – Danish healthcare provider brochure 2026
New: Caregiver leaflet on mental health at ADOA(-plus)
ADOA and ADOA-plus have a major impact on the daily functioning and psychological well-being of those living with it, as well as their loved ones.Due to the continuous loss of opportunities, they often go through a process of 'living loss' and recurring grief.To better support mental health practitioners in this, we have the brochure. How do you support the mental health of people with ADOA and ADOA-plus? developedThis brochure offers therapists and psychologists practical do's and don'ts, tools for each life stage, and insights into themes such as loved ones, family planning, and ADOA-plus..
Are you currently undergoing treatment yourself? Feel free to share the leaflet with your healthcare provider.!
Caregiver leaflet on mental health at ADOA(-plus) – Dutch 2026
Medication list
Certain medications are not recommended for mitochondrial diseases. There are also anesthesia protocols that must be followed.
Read the research on which the English medication list is based
Please note: do not just stop taking prescribed medication. If in doubt or about its use, consult the doctor who prescribed it.
Lists and translations
Donation brochure
We've also created a donation flyer to raise awareness of ADOA and the Cure ADOA Foundation and to solicit donations to support scientific research. This flyer can be used for smaller initiatives like deposit refund campaigns, sponsored walks, markets, and more. We'd be happy to send it to you!
Read more in our news item 'Donation brochure now available!'
Business cards
We also have handy business cards that you as a healthcare provider can give to patients.
Miscellaneous
Physicians familiar with ADOA(-plus)
The link below takes you to the list of physicians familiar with ADOA(-plus). The list is available on Google Drive and is freely accessible. If you log in with your Google account, you can also add physicians and countries. You can also contact us. send an email to refer to a doctor.
Tips for resources
During the online peer group meeting on February 18, 2021, the theme was Aids. Below you will find all the tips and advice with some useful links:
