Since 2025, the Cure ADOA Foundation is an official member of EURORDIS! This is a non-governmental alliance of patient organizations for people with a rare disease.
💙 There are more than a thousand member organisations. In this way, EURORDIS is working on a strong community of patient organisations and people living with rare diseases.
Themes that the alliance focuses on include: diagnoses, research, treatments and much more. Information is exchanged among each other, but the alliance also works to bring rare diseases to the attention of the European Parliament. EURORDIS is also the organizer of the worldwide 'Rare Disease Day'.
We are very much looking forward to joining forces with other patient organisations in Europe!