Online meeting of the Cure ADOA Foundation for German patients
On Sunday morning, July 5, we are organizing a 1,5-hour online meeting for the German ADOA community. The meeting will take place via Microsoft Teams, so that everyone can easily participate, wherever they are at that moment.
We are very pleased to welcome Prof. Kühlewein from the University Clinic Tübingen as our guest. During the meeting, she will provide insight into current developments in research and care for ADOA and ADOA-plus. We will also discuss new perspectives for treatment and support, and the ongoing Osprey study by Stoke Therapeutics.
In addition, the exchange with other fellow sufferers is central. Precisely because ADOA is a rare eye disease, it can be very valuable to share experiences and exchange tips with people who know your situation. We talk about daily life with ADOA and keep each other updated on the latest developments.
Following this, there will be ample opportunity for the community to ask questions directly to Prof. Kühlewein.
🗓️ Sunday, July 5, 2026
🕙 10:00 AM
⏱️ Duration: 1,5 hours
💻 Online via Microsoft Teams
The official invitation will follow later, but you can already register via the registration form.
🔗 Sign up here immediately: https://forms.cloud.microsoft/e/YHDZVaCYEq
We will send the confirmation with the Teams link by email in the last week of June.
💙 So mark Sunday, July 5th in your calendar. We look forward to meeting you online!
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