We've achieved so much together in 2025. We're proud to share some important milestones:
📄 New materials & information in many languages
We developed and updated information brochures, donation flyers, business cards and medication lists.
👉 All downloads and materials from Cure ADOA Foundation can be found here:
https://adoa.eu/downloads
(I.e. Information and visibility in healthcare
We attended the NOG Congress and the National Eye Congress and provided information to the ophthalmology department of the UMC Utrecht.
👉 Read about our presence at the NOG Congress 2025:
https://adoa.eu/nieuws/cure-adoa-foundation-op-het-nog-congres-2025
👉 Read about our participation in the National Eye Congress:
https://adoa.eu/nieuws/cure-adoa-foundation-op-het-nationaal-oogcongres
👉 Read about the information provided at UMC Utrecht:
https://adoa.eu/nieuws/voorlichting-umc-utrecht
(I.e. Concrete investment in research
We made another donation to Stanford for research into a cure for ADOA.
👉 Read about our donation to Stanford Medicine for ADOA research:
https://adoa.eu/nieuws/cure-adoa-foundation-steunt-onderzoek-stanford-medicine-met-100-000
✅ Reliability & cooperation strengthened
We obtained the CBF quality mark and became a member of EURORDIS.
👉 Read about our CBF recognition as a charity:
https://adoa.eu/nieuws/cure-adoa-foundation-is-cbf-erkend-goed-doel
👉 Read about our EURORDIS membership:
https://adoa.eu/nieuws/cure-adoa-foundation-lid-van-eurordis
🤝 Peer support that connects
We organised two well-attended peer support days with (inter)national guest speakers.
👉 Read about the ADOA Plus Day on March 29:
https://adoa.eu/nieuws/adoa-plus-dag-29-maart
👉 Read about the successful ADOA day with 99 visitors:
https://adoa.eu/bijeenkomsten/geslaagde-adoa-dag-met-99-bezoekers
🎧 Our podcast went live
With transcripts and translations, so that as many people as possible can listen in.
👉 Listen to the Cure ADOA Foundation podcast:
https://adoa.eu/podcasts
💬 Stories that touch and give hope
We shared personal stories and interviews, including those of Carlo, Laura and Ryan.
👉 Read personal stories and interviews about living with ADOA: https://adoa.eu/verhalen-en-interviews
🧬 The road to treatment
We spoke with researchers and organizations working to cure ADOA, including Stoke, PYC, Stanford, ASHA, and MUMC+.
👉 Learn more about the road to treatment for ADOA:
https://adoa.eu/de-weg-naar-de-behandeling
???? Global reach
Fellow sufferers from all over the world found us and our website was visited thousands of times.
💙 Together we've accomplished a lot and we can't wait to do even more in 2026!
[Image ID: Fireworks sparklers from 2025 with the text "2025 in a bird's-eye view. Together we made ADOA more visible."]
