Op Saturday 24 October Another valuable ADOA day is on the schedule! Everyone involved with ADOA or ADOA-plus is warmly welcome: from patients and their partners, family, or caregivers to healthcare professionals and parents of children with the condition.
Also for international fellow sufferers
We also welcome our international visitors and their loved ones with open arms. For English-speaking visitors, there is a separate area guided by Peter. Participation is completely free!
Sign up
You can register until the latest Friday October 9, but we ask you to do this as soon as possible due to the organization and catering.
You can register via our registration form, available in three languages:
Program
10:30 – 11:00 Walk-in Business Lounge with coffee/tea and treats
11:00 – 11:15 Welcome by our chairman
11:15 – 12:00 First round presentation Stanford/Bartiméus workshop
11:15 – 12:00 Workshop for youth by Janita
12:00 – 13:15 Live cooking lunch buffet in the restaurant
13:15 – 14:00 Second round presentation Stanford/Bartiméus workshop
13:15 – 14:00 Presentation for international participants by Peter
13:15 – 15:15 Swimming with Ilse and Elon/workshop by Janita
14:15 – 15:15 Information market
15:15 – 15:30 Closing
Speakers
Joyce Liao on the latest scientific insights into ADOA research
Joyce Liao, Professor of Ophthalmology and Neurology at Stanford Medicine, is a leading researcher in the field of ADOA.
During this English-language presentation, she will take us through the latest scientific insights. What are the most recent developments in research into ADOA? What steps are being taken worldwide, and what does this mean for the future? Naturally, there will be time to ask her questions afterwards.
Gerjanne Zielman on the mental impact of living with ADOA(-plus)
Gerjanne Zielman, advisor and expert at Bartiméus, has extensive experience in providing support for visual impairments and rare diseases.
This Dutch-language workshop focuses on the mental impact of living with ADOA and ADOA-plus. How does receiving this diagnosis affect you? How do you cope with the uncertainty regarding the progression of your vision, and how do you find a good balance in this in daily life? Gerjanne offers practical tools, and there is ample opportunity to share experiences and ask questions.
Program for children
This year, we once again have a special program for children on ADOA Day!
Creative workshops and swimming
Janita is organizing a number of creative and active workshops especially for young people this year!
During these enjoyable workshops, children engage in various fun activities in an accessible way. It is the ideal way to spend time together and to get to know other children who also deal with ADOA(-plus) in a relaxed manner.
With Ilse and Elon, the children can relax for a while in the swimming pool at the Van der Valk hotel.
Location and accessibility
The ADOA day takes place in Van der Valk Hotel Breukelen, Stationsweg 91, 3621 LK Breukelen.
The hotel is easily accessible by public transport. It's a 3-minute walk from Breukelen train station. Parking is free; you can request an exit ticket at reception.
And then this…
⚫ Do you need help or guidance with transportation? Let us know by October 17th. We are happy to think along!
⚫ If there is anything that is stopping you from coming, please let us know, we will be happy to help you.
⚫ Should you need a sign language interpreter, please let Gabriëlle know via info@adoa.eu.
⚫ Useful information for traveling: NS travel information for traveling with a disability.
⚫ What if you've registered and unexpectedly can't attend? Please send an email or text to Gabriëlle. Her phone number is 0657-276427, and you can email her at: info@adoa.eu.
⚫ Do you have any questions? Please send an email to info@adoa.eu.
