Saturday 29 March there is another day planned especially for people with ADOA-plus. The ADOA-plus day. All people who have ADOA-plus themselves or who care for a child with ADOA-plus are very welcome. And of course their supervisors, partners and close family too.
We invited Dr. Mirian Janssen as a speaker. She is an internist in metabolic diseases at Radboudumc. Dr. Janssen has extensive expertise in the diagnosis and treatment of mitochondrial diseases and is involved in various clinical trials.
In addition, we have reserved time for exchanging experiences. The day is completely free for all participants.
You can register by clicking the button below or fill in the registration form here.
Program
13.00 - 13.15 Walk in
13.15 - 14.15 Welcome by the board and presentation by Dr Jansen
14.15 - 15.00 Share experiences while enjoying a drink and a snack
14.45:15.00 - XNUMX:XNUMXur Closing
We hope to meet everyone with ADOA-plus (again) on March 29!
Location
Because it is so centrally located and easily accessible, we again chose:
Van der Valk Hotel Breukelen,
Stationsweg 91, 3621 LK Breukelen
The hotel is easily accessible by public transport. It is a 3-minute walk from Breukelen train station.
Parking is free, you can ask for an exit ticket at the reception.
And then this:
- Do you need help or guidance with transportation? Let us know by March 23rd. We are happy to think along!
- If there is anything that is stopping you from coming, please let us know, we will be happy to help you.
- Useful information for traveling: NS travel information for traveling with a disability.
- If you are unexpectedly unable to attend, please send an email or text to Gabriëlle. Her phone number is 0657 - 276427 and you can email to: info@adoa.eu.
- There is no separate program for children. We would like to hear in advance if you want to bring your children.
- Do you have any questions? Please send an mail to mireille@adoa.eu.
Yours faithfully,
Gabrielle den Hollander – Beijer and Lotte de Jonge
on behalf of the board of Stichting Cure ADOA Foundation
