For and by patients with ADOA(-plus)
The Cure ADOA Foundation was founded in 2018 by and for patients with autosomal dominant optic atrophy (ADOA) and the plus variant. Since 2022, we have been an officially recognized patient organization by the Ministry of Health, Welfare and Sport. We are also a non-profit organization with ANBI status and we are affiliated with the Association of Collaborating Parent and Patient Organizations (VSOP).
In addition to the general board, we also have a medical advisory board that supports us in medical matters. Our mission is a platform for fellow sufferers and their loved ones and to make scientific research into ADOA(-plus) financially possible, so that research into the treatment and cure is stimulated. To achieve this, we want to promote our name recognition nationally and internationally.
Fellow sufferers days
We organize a fellowship day several times a year. We have noticed that the interest is great and there is a need to talk to each other about living with ADOA(-plus).
There is plenty of time on this day to ask questions to the board, to each other or to invited speakers. Keep an eye on our social media channels and/or newsletters for these days.
Cure ADOA Foundation app
We have our own app for everyone who has a connection with ADOA(-plus). With this app you can talk to each other in group chats, but you can also chat 1-on-1. In addition, we share news items and activities here. With this app you can stay up-to-date with all the latest news.
The app is also available in English, German and French. This way we are in contact with each other worldwide.
Download the app for free in the Apple Appstore or Google Playstore. The platform can also be viewed via the web browser.
Would you like to join our ADOA(-plus) community?
To register, please email your full name and email address to Marieke. Are you a doctor or researcher? Please let us know when you register. You can also email Marieke with any questions about privacy, etc.
Special children's page
ADOA(-plus) is hereditary and young children can also be confronted with this condition.
There is a private one for children children's page. Here they can read everything about the condition and its origins.
The information on this page can also be used for, for example, a presentation or paper.
Information for patients with ADOA(-plus)
We try to keep you informed on a regular basis newsletterf, the app or the social media. Practical information can be found under information. There are several pages on topics that concern or confront patients. Also view our Facebookpagina and join our private Facebook group Dominant Optic Atrophy DOA.
Stories and interviews
We regularly post a story or an interview.
Would you like to share your story? Please contact us via info@adoa.eu.
